Sunday, February 21, 2016


Hello again, I haven't been very good about keeping up with my blog. (Insert embarrassed face here.) Truth? My only excuse? I have been having troubles, in the past six months, with juggling things. Being a mom (and alllll that entails), work, and managing my health have become huge for me in the last six months.

Having said that, I'm still having little conversations with people when I can to educate about invisible illness and chronic illness. Both of which often overlap each other. I regularly feel like I'm embarrassed to tell people about my various health problems. It's a perceived weakness, in society. But really it's proof that I'm strong.

I'm strong enough to get up and out of my bed every day despite anxiety popping up that can be crushing to one's spirit. I'm strong enough to push past the joint and muscle pain that plague me throughout the day. I'm strong enough to run all the "mom errands", ignore the exhaustion, and still make it to my daughter's soccer games. I'm strong enough to accept my limitations and know when to push myself and went to sit back and watch. I'm strong enough to come up with other ways to express myself when words are simply failing because of Brain Fog. I'm strong enough to find little blessings in every day rather than letting the weight of chronic illness bury me.

Wish we could turn the tables on the perceptions of chronic illness and shine the light on the strength of those living every day with their illness.

Friday, October 16, 2015


Guys, it's been forever!! Crazy long time! I spent the last part of the summer soaking up all the time I could with my girly before it was over. 

Once school started I went back to work in the school's cafeteria. This year my body hasn't acclimated as well as it has in the past with all the walking and moving. Energy levels have been pretty low for me, which has kept me resting a lot more on the couch than I've been accustom to lately. My joints have not been happy with me and I've developed bursitis in my shoulder from the repetitive movements my job requires. My rheumatologist gave me a shot of Cortisone in my shoulder which worked wonders for me! And now, for the most part you are caught up with the basics that I haven't had the time or energy to share with you recently.

A big part of my life in the fall is soccer. My girly plays at least one game every weekend. In the past year I have become highly sensitive to the cold due to my Reynaud's Disease. Fortunately up until now it's been fairly warm to be outside. Now it's beginning to get chilly in the mornings in Pennsylvania and I am having a harder time keeping warm. I feel absolutely ridiculous because I am bundled up in scarves, hats, and gloves already in 50 and 60 degree weather. I am blessed with a super understanding and supportive husband (after he's chuckled at me for only having my nose sticking out). 

My husband has previously found me Hothands to use in the wintertime. They are little packets that create heat when exposed to oxygen. I pop them in my sweatshirt hoody in the morning and they are still warm ten hours later. I love them and they keep the Reynaud's issues away for the most part.

This year my honey found me something new to keep my hands warm outside! They are gloves/mittens that Hothands makes to allow a person to tuck a heat pack into and take them on the go. They have glove fingers with a mitten fitted around it to keep the Hothands in. And the pointer finger, of the gloves, are fitted with a touch sensitive pad to allow you continued access to your iPhone. Which will definitely come in handy for me as I have always had to choose between keeping my hands warm or taking pictures on my phone. Boom! Problem solved!! 

The gloves were very affordable and I am completely giddy about them!!!

*I was not compensated for these in any way, nor was I asked to write this by anyone. This is simply me writing about a great find that might help others with their circulatory issues. (Wish I could test out more of their products as I have loved them all so far!!! Ha ha ha!)

Friday, July 31, 2015


This past weekend my little family ran away to the beach. It was such a gift to me. A long moment of joy. I had no cares beyond what fun thing we were going to do in the next hour and which treat to buy for dessert. It was marvelous, and I feel like this pictures captured it so well!!

I wish you moments of pure joy and peace in this coming weekend!

Monday, July 13, 2015

Lazy Summer

I realize I haven't post anything in awhile. I'll try to do better but can't promise.

My girly and I have been busy doing a whole lot of nothing. And we're loving it!! Every once in awhile my mommy guilt kicks in and I start to feel guilty that i haven't done more with L this summer. (I've spent a few days on the couch this summer for sure.) But then I remind myself that we are still making some amazing memories just sitting at home whiling away our days doing "a whole lot of nothing". And if we were so busy rushing around to get to one activity or another then we'd be missing the little things. Like the breathtaking view we got one lazy afternoon as we made our way to pick up our csa box for the week. It's the little things that count the most sometimes.

I hope your summer is going great!

Wednesday, June 10, 2015

Berry Picking

My girly and I decided to go berry picking one day last week. We slathered the spf50 on, threw on my hat, and took off with our buckets to our local Farmers Market.

We ran into a great bit of luck and found some amazing berries in the fields! And somehow we ended up pick nineteen pounds! Yes. You read that right!!

My girly and I spent the afternoon slicing up strawberries. We set some aside to make a pie later this week. Some got sliced up and sugar was added (my girlys favorite way to eat strawberries), more had the tops cut off and were thrown in the freezer for smoothies, and the rest were sliced up and frozen to use with strawberry shortcake sometime in the future. I was pooped by the end of the day, but it was worth it!

Tuesday, May 26, 2015

Family Fun

 I hope everyone had a great Memorial Day weekend!
 We spent the weekend, camping with family, with no phone service. Perfect!

Monday, May 25, 2015

Color Run

Last year I found out that the 5K Color Run was coming to Hershey. The run promotes health and making fitness fun by "releasing" (read pelting) color at you. By the end of the race you are a virtual rainbow. I wanted to take part so badly. 

Then the fears kicked in. Can I walk the whole thing? Would my asthma give me issues after breathing in the colored powder? If I got the powder in my eyes would it cause issues for my Sjogrens? The worries and what ifs circled in my head. And I let them defeat me. I gave in to my fears and gave up on my "dream".

The day of the race I sat in my defeat and watched all my friends Color Run pictures fly by on Facebook.

This year. This year, I wanted to take part so badly. Then the fears kicked it. 

Until my greatest fan came along to kick those fears in the butt. My husband reminded me about how strong I am. He told me about the woman I am, who is living life with Sjogrens. Who is LIVING and not letting Sjogrens run my life. I heard stories of the times I've set out to do things, thought I would fail, and conquered. My husband who has taught me so much about myself and what I can accomplish gave me the courage to try. 

So, I threw it into the wind and said, "I'll do my best and be happy that I didn't let my fear and Sjogrens win."! 

My mom, aunt, and cousin decided to join me too! I won't lie and tell you it was all a walk in the park. It was hot. And there were some really steep hills. I reached the finish line tired but exhilarated. I made it, gloriously covered in a rainbow of colors and sparkling like a unicorn! Ha! You think I'm joking!

Take that Sjogrens!!