Sunday, April 13, 2014

Lesson Learned

I spent two hours outside, yesterday morning, watching my girly play her first soccer game of the season. Loved every minute of it. I did not love the sunburn I got thanks to my Plaquenil. I should take the warning on the bottle, "Avoid prolonged sun exposure" more seriously. I somehow manage to forget this every spring!!

I guess I'll be sitting under a golf umbrella at practice today! (- :o)




Wednesday, April 9, 2014

Thankful

I am thankful for a "good Sjogren's day", to get ready for picture day today. I never would have been able to make all those little braids with my arthritis flaring.

I haven't had too many bad days lately. They've been more like "Meh, it's annoying that my muscles are twingy today" kind of days. Which, I will take over the "couch mama" days for sure! But days like that. "Good Sjogren's days", are a gift from God. They are days when I get to be Mama with no thoughts or worries playing in the background of my head. Beautiful.

Now, I can't wait to see how her pictures turn out!!



Friday, April 4, 2014

Happy



I woke up feeling awful yesterday and was determined to not let it get to me! So I decided to play "Happy", on my phone, and dance my way through the lunch shift at work. 

I discovered it is physically impossible for kids to hear that song and not start to move. Okay, so it's physically impossible for me to hear the song and not dance as well! 

So I danced off some calories, had lots of fun, made a bunch of kids smile, tons of giggling, and forgot about my troubles for two hours. :o) 

That's how it's done!






Wednesday, April 2, 2014

Go Shop Sjogren's Syndrome

I was perusing Amazon last night and was alerted to a new opportunity. A box popped up and told me that I can now donate to a charity of my choice while doing the shopping that I would be doing anyway.

Cool deal! I entered Sjogren's into their search and several charities came up. I chose the Sjogren's Syndrome Foundation. They are a great group for Sjogren's education, awareness, and fund raise to encourage scientific research.

After I chose my charity I simply bookmarked smile.amazon.com and now 0.5% of the price of my eligible AmazonSmile purchases go to the Sjogren's Syndrome Foundation.

I encourage you to go pick out a charity at Amazon for yourself! I've heard the Sjogren's Syndrome Foundation is a great one.  "Wink wink!"



Friday, March 28, 2014

SASS

I was going through some of my old blog posts and came across some that I love and bring some great memories with them. I may repost some, for a short time, as I slowly get back to "normal" with my health. Anyway, here is a blurb from one of my old posts that I smiled at and had to share...

"Why do I sometimes feel like I am letting myself and others down? Defeated by my disease? A personal failure? Why don't we celebrate the fact that we fight our "fights" every day?

This makes me want to throw a big party, to celebrate what we accomplish every day. All the small victories should count for something right? Like being able to tie our own shoes some days, walking up the stairs without pain, getting on the floor to play with our kids, standing long enough to make a meal for our family, or even a shower should be considered something of a conquest. And, the "party" (for lack of a better word), I'll call it my... Spectacularly Awesome Sjogren's Shindig! Or SASS for short!"

So. Who wants to come to Hershey for some SASS this summer?




Friday, March 21, 2014

Why?

Why? It's a simple question. It becomes not so simple when I am asking God that question.

Why did he allow me to get Sjogren's Syndrome?

I'm trying to keep in mind that there is a reason why I have it. Why He placed this burden on me. It's part of His plan. And I may not know for years, or ever, why. Why?

Recently I read this and felt so much comfort from it...

"Let's sit still for just a moment or two today. Quiet, without the weight of condemnation or the swirl of trying to figure things out. Quiet, with nothing but the absolute assurance the Spirit helps us in our weakness.

He knows what to pray. He understands our weak places. There is a purpose to this weak place. Though it doesn’t feel good, things will be worked out in a way that good will come from it, (Romans 8:28)- Lysa Terkeurst"


Whatever God's reason for this, it's bound to be something amazing, I have to think that.



Tuesday, March 11, 2014

Reminder

In church the other day I was reminded that it's important for us to share our fears and troubles with others and not keep up "the perfect christian" facade with the world. I was encouraged by the thought this past weekend. However, the more I think about it the more confused I feel. Or maybe that is a poor way of phrasing things. I suppose it's more that I am playing "Devil's advocate" with myself about this thought.

How do you keep the "walls down" and let the world know that you need help? Especially when you theoretically could need help all the time. And when no one asks?

How do I share my troubles? When people (family, friends, or acquaintances) ask, "How are you?", do they really want to know that my body hurts just moving it, or that my energy levels are crazy low just from doing my every day mom duties? Or do they just want a simple, "I'm good. How are you?". Do they really want to know? Or has it just become an expected social nicety that doesn't even register with the asker? And how many times can you reply honestly before a person stops asking?

I guess I may never come up with answers for myself, as my thoughts change about this. But I do know that my husband ends up being the one to ask how I am and to help me. All the time he helps me. I am SO blessed with him.:o)