Monday, April 20, 2015

Journal

I've been making a journal for my girly since she was two years old. It's full of jokes she loved at three, funny stories, and letters I've written to her about what's happening in her life. I decided to add some art work to it for her. I love the way it turned out and thought I'd like to share. (Incidentally, part of the picture is a little blurred as I had to paint over my girly's name in Photoshop.)

Sent from my iPhone



Monday, April 13, 2015

April Fools


I know this is super late. April Fools is the first and now we've landed on April 13th. I happened upon this while I was uploading some pictures and I had to share with all of you!

This was a super simple April Fools joke I play on L!! And as you can see, she was perplexed!!

Are you ready for it? I made a bowl of cereal, made sure all the cereal came in contact with the milk to make it wet, and then I popped it in the freezer. In the morning I pulled it out and set it down in front of L and you couldn't tell it was frozen until she tried to stick her spoon in it.

Priceless!!


Monday, April 6, 2015

Easter

I hope everyone had a wonderful Easter spent with family! Ours was great!


Monday, March 30, 2015

Wow!

I was looking back through pictures of my husband and I and suddenly realized how far we've come in our journey to be healthier. We're at 70 pounds lost together and counting!!




Monday, March 23, 2015

See a Need Fill a Need

A friend of mine took up knitting. She showed off a cute pair of fingerless gloves on Facebook. It got me thinking, I could really use a pair of those!  Oooh with a pocket to slip my Hot hands packs into. Only it needed to be a pocket in the palm of my hand instead of on the top of my hand so I could warm my fingers up too, if I needed it. Now that would be amazing for my Reynauds!! (Which you can read more about here.)

So I did an internet search and couldn't really find anything that fit what I wanted. Okay, yeah I was being picky, I'll admit. I had a certain thought in mind and just couldn't find anything to match it. So, I decided to get crafty and see what I could come up with.
I started with a scrap of leftover fleece that I had laying around the house. I measured my hand and arm and cut two strips.
Next I simply sewed the two longer sides together.

And there are my fingerless "gloves"! They reach down my forearm and can slide up to cover my hands if I need them to.

I can even fold them over to slip one of my Hot hands in to sit over the palm of my hand. Perfect!!!

Monday, March 16, 2015

Monday Smile

Fur-baby #1 had an E.T. moment the other day. (Ie; paralyzed by fear because of the vacuum, she momentarily let L take advantage of the situation and wrap her in blankets.)

Monday, March 9, 2015

I Am Enough

In the past few days I have been struggling with something very common to chronic illness patients. I face this feeling every year around this time...The thought of, "What makes me worth it?".

With all the Sjogren's issues that I write about in my blog, I rarely go into how much my husband and daughter are affected by my illness. It's usually about what a Sjogren's patient has to go through. For every allowance I have to make to live, survive, and overcome Sjogren's. Every. Single. Day. My family deals with every bit as much, if not more than I do. There's missed trips to the park on low-energy days. My husband has taken over the bulk of the laundry duties so I don't have to carry baskets full of clothes up and down the stairs. And he let's me put my, ice cold, Reynaud's hands on his back to warm them up. That's just the tip of the ice burg and doesn't even begin to go into the tiny little things that my husband thoughtfully does for me every day, in order to make things easier for me, that I don't even realize that he's doing.

It hurts. I have guilt so deep, for what my husband and daughter have to endure because of me, that it hurts. It digs into my heart and just sits there in a heavy lump that makes my eyes burn with tears and my throat close up with remorse. And it leaves me wondering what makes me worth it. What do I give to them to make up for the fact that they deal with these hardships because of me. I don't mean monetarily, or anything so superficial. Buying my daughter an extra DS game isn't going to solve the issue clearly. It's about what I give to the relationship that makes my husband want to stick around and makes my daughter continue to love me unconditionally without getting tired of the ridiculousness of this disease we deal with. Because it IS a "we" that happens when a person in a family has a chronic illness.

My mind seems to wonder and wander over and around these thoughts and feelings about this issue. And I hope that I may have conveyed just a small portion of what I am thinking and feeling well enough. Though, I do feel as if this post is a little "all over the place" as I wrote things as they came to the forefront of my mind. Or perhaps it is merely a good example of the complexity of emotions and thoughts that revolve around dealing with a chronic illness on a daily basis. Sjogren's isn't just about how it affects a person physically. There is a very real emotional side that comes into play as well ( as is the case with a lot of chronic illnesses).

For now, I am trying to block out these thoughts and feelings of, "What makes me worth it" and focus on "I am enough".

I. Am. Enough.