Wednesday, July 31, 2013

Our Pretty Little Project

This project started because L and I were trying to reuse a bunch of craft items we had laying around the house. (She put in about 12 of the flowers and, got tired of it, and asked me to finish it for her.) 

I think we should have our own mother/daughter crafting show. We'd call it, "The Honeygirls"!




Tuesday, July 30, 2013

Video Share

 This video has had my girly and I mesmerized. Take a look!





Monday, July 29, 2013

Fun Experiment

I don't remember how we got started on the subject but L and I decided to start an experiment on erosion. So I got on my trusty apron... And collected some dirt from our yard.


Then I added some water to make it nice and muddy.
I made a line in the mud to encourage some "erosion action" once we got to the experiment.
Once it had dried enough we ran water, from the faucet, over the dried mud to see what would happen. Look at those lovely erosion patterns in that picture! Perfect example!
And of course the experiment needed to be attended by a princess! Then our erosion fun turned into a muddy mess. :o) No surprise there!

Sunday, July 28, 2013

Birthday

Photo Credit

Today's my birthday. I'm 33. :o)

While I didn't expect to be dealing with a lot of the medical issues, that I am, I honestly can say that I am so so blessed!



Saturday, July 27, 2013

Big Adventure

I absolutely LOVE this!



Friday, July 26, 2013

Study

Some very interesting information came out of a recent study done on Sjogren's Syndrome.

"The study found that natural killer cells were more active in patients with the syndrome. It also found that natural killer cells from Sj√∂gren's syndrome patients tended to have a higher number of receptors, known as NKp30 receptors, on their surface. These receptors work by helping natural killer cells interact with other cells, and thus, trigger an immune response.....

......Background information from the study tells us that the NKp30 receptors also bind to help a small molecule that is produced on the surface of salivary-gland cells when the cells are stressed by things such as inflammation or infection. This interaction may play a role in the persistence of the disease, according to researchers."

This info was posted in an article published on Science World Report. You can read the article in it's entirety here. Live Science has also posted a brief article about the study here.



Thursday, July 25, 2013

Video

I wanted to share this video with you guys. I just found this gentleman to be so inspirational that I had to post it.





Wednesday, July 24, 2013

Unicorn Farts

Oh. My. Goodness! I want to make these, with baby girl, SO so badly!!!  Ha ha ha ha




Tuesday, July 23, 2013

Understanding

I have had a family member treat my illness with indifference. I am not completely sure if that is the exact way of it but she certainly doesn't seem to understand or want to. I can't tell you the times I have attempted to explain why I can't do certain things, to no avail. There are times I come away from a conversation, with her, feeling as if I am lazy or maybe just a little crazy. Which leaves me with hurt feelings once I've spoken with my husband who helps ground me and talks me through things enough to realize that it's her, not me, with the issues.

Recently, this family member came down with an illness. She has previously been abundantly healthy so she has had a hard time with being down and feeling sick constantly. Fortunately, she's over the worst of it now. While I felt absolutely horrible hearing she was sick, knowing what she was going through feeling badly all day every day, I was anticipating some dialog about illness. That maybe we would finally connect on some level, have a little mutual understanding.

Well, the convo we had left a lot to be desired. A lot. I'm not really sure where I went wrong but I was pretty much blown off.

I guess she'll never really understand, which makes me sad.





Monday, July 22, 2013

Good Day

This....
Is all that is left of a ginormous banana split, that has quickly become a family tradition for our family.

Every year we gather the family together and head up to an amusement park about two hours away from our house. The banana splits are always part of the fun!!




Sunday, July 21, 2013

A Good Cause

Check out this website here to see more about Christine, a fellow Sjoggie, who is trying to raise money to publish her book, Tales From the Dry Side, about Sjogren's Syndrome.

Here, you can read an excerpt  from the book as well.

Please go have a look around and consider donating to her cause!!



Friday, July 19, 2013

Hot, Hot, Hot

Oooo, baby, it's hot outside!! The northeast is in a heatwave.

I turned on my phone this morning and this is what I saw....

Notice the light blue print in the lower left corner, which says, "Feels like 90".

This was at 8:30 this morning! Yikes!

Which means this Mama will not be going outside for any length of time or I will end up insanely sick. I will just be running from the air conditioned car to the air conditioned house and back again. :o(




Thursday, July 18, 2013

Sicky

My girly has been sick for the last few days. It started Tuesday afternoon with a cough. Then a fever decided to come and party with it Tuesday evening as well. I am not exaggerating when I say that between hearing her cough and having her call for us, we were probably woken up every hour on Tuesday night. I, honestly, felt like I had a newborn in the house. Poor baby girl was just miserable! And I felt horrible for her. I really did! In that oh-I-want-to-take-your-sickness-for-you-kind-of-way that moms have. Long about six o'clock on Wednesday morning I was just done. So we resorted to movie time and dosed for a little bit.

Now, I know this will come as a complete shock to you but, that was So so so not enough sleep for me in one night! So I started out that day with a deficit of energy and sleep.

And, of course, Wednesday happened to be the day that L planned to go stay at her grandparents for some cousin time and a sleepover. So she was devistated. Which I get. So we tried to go along with things for the day to help her feel better. I hit my limit at dinner time when I told her that she had to eat the peanut butter and jelly that was leftover from the lunch on the previous day when she decided that she didn't want to eat it, and of course she didn't want to eat it for dinner either. So the convo went pretty much like this...

"Mama, what's for dinner?"

"The peanut butter and jelly, and........."

"No!!! I can't eat that sandwich!"

"Why?"

"It's jelly!"

"What's wrong with jelly? You like jelly!"

"Um, it's smushed too, and I don't like that."

"Nice try. What kind of fruit do you want with it?"

"Jello fruit?"

And, of course, we're all out of it!! And the whining ensued.

"Okay, I'll take applesauce. But.... I'm not really that hungry so...."

"So.... that really means that you'll eat the all applesauce, a bite of the peanut butter and jelly, and then say your full?"

"Yep. Sounds about right!"

At that point, I threw my hands up in the air, yelled to the sky, "Whatever!", and gave in. Sometimes, a mama just has to pick her battles. Especially after she's hasn't had more than two solid hours of sleep all night and a miserable kiddo.









Wednesday, July 17, 2013

A Visit with Dr. A

I had my check-up, with my rheumatologist Dr. A, this afternoon. We've added small joint arthritis and neuropathic pain involvements with my Sjogren's Syndrome.

My doctor took nine vials of blood today. Baby girl held my hand and crooned to me the whole time she voraciously watched the nurse taking the aforementioned blood. In addition to checking my ANA counts, and several other things, Dr. A is also testing me for Rheumatoid arthritis.

I had two more additional medicines added on to my daily list today. One for the arthritis and a separate one for the neuropathic pain. That brings my total to ten medications, thirteen doses, with a possibility of taking sixteen doses in a days time. If that makes sense?

After doing some research on the new drugs. Which I shouldn't do. I know this. I always end up freaking myself out! So, despite knowing what I do, I looked up possible side effects. One of the medications brings with it a possibility for stomach ulcers. (Especially since this I am on two antibiotics on a daily basis.) And under the list of possible side effects for the other drug are dizzyness, possible memory loss, and alerations in moods and personality. (Another words, there's a chance I may develop suicidal thoughts or tendancies.) Yikes!  I will have to see if these medications work well enough for me to overlook the possible side effects!

So, all in all the visit wasn't the greatest appointment I've had. But.... it could have been sooo much worse!



Monday, July 15, 2013

Recipes

I found a Facebook page that I am loving for recipes at the moment! If you can get past the annoying advertisements for the supplement they are most likely getting paid to talk about then you'll find some great food.  Getting Healthy & Staying Healthy has some super yummy recipes posted that are good for you. Like....


Oven Roasted Cauliflower

(Source -from the kitchen of One Perfect Bite inspired by Emeril LaGasse)

Ingredients:
1 medium head cauliflower (about 2-1/4 pounds), trimmed and cut into florets
3 large cloves garlic, thinly sliced
1/4 cup olive oil
2 tablespoons lemon juice
1/2 teaspoon salt
1/4 teaspoon black pepper
2 tablespoons grated Parmesan cheese

Directions:
Heat oven to 450 degrees F. Combine cauliflower and garlic in a large bowl. Drizzle with olive oil, lemon juice, salt and pepper. Transfer, in a single layer, to a large rimmed baking sheet. Roast at 450 degrees F for about 25 minutes,
stirring once. Sprinkle with cheese. Serve immediately Yield: 6 servings
Photo: Oven Roasted Cauliflower...oooooh totally yum yum!!

(Source -from the kitchen of One Perfect Bite inspired by Emeril LaGasse)

Ingredients:
1 medium head cauliflower (about 2-1/4 pounds), trimmed and cut into florets
3 large cloves garlic, thinly sliced
1/4 cup olive oil
2 tablespoons lemon juice
1/2 teaspoon salt
1/4 teaspoon black pepper
2 tablespoons grated Parmesan cheese

Directions: 
Heat oven to 450 degrees F. Combine cauliflower and garlic in a large bowl. Drizzle with olive oil, lemon juice, salt and pepper. Transfer, in a single layer, to a large rimmed baking sheet. Roast at 450 degrees F for about 25 minutes,
stirring once. Sprinkle with cheese. Serve immediately Yield: 6 servings.

To SAVE this , be sure to click SHARE so it will store on your personal page.

We would love to have you Like our page for more every day fun, tips, recipes, weight loss support & motivation... www.facebook.com/GettinghealthyNstayinghealthy 
Or....

Tomato Basil Pasta

Pasta, Tomatoes, Veggie Broth, Olive Oil, and Seasonings (details below)

Throw it all in the pot, INCLUDING the uncooked Pasta, and cook! - Bring it to a boil, then reduce to a simmer. The starch leaches out of the pasta and makes a rich, warm sauce for the noodles. The other ingredients cook right along with the pasta
Ingredients

12 ounces pasta (I used Linguine)
1 can (15 ounces) diced tomatoes with liquid ( I used zesty red pepper flavor)
1 large sweet onion, cut in julienne strips
4 cloves garlic, thinly sliced
1/2 teaspoon red pepper flakes
2 teaspoons dried oregano leaves
2 large sprigs basil, chopped
4 1/2 cups vegetable broth (regular broth and NOT low sodium)
2 tablespoons extra virgin olive oil
Parmesan cheese for garnish

Directions

Place pasta, tomatoes, onion, garlic, basil, in a large stock pot. Pour in vegetable broth. Sprinkle on top the pepper flakes and oregano. Drizzle top with oil.

Cover pot and bring to a boil. Reduce to a low simmer and keep covered and cook for about 10 minutes, stirring every 2 minutes or so. Cook until almost all liquid has evaporated – I left about an inch of liquid in the bottom of the pot – but you can reduce as desired .

Season to taste with salt and pepper , stirring pasta several times to distribute the liquid in the bottom of the pot. Serve garnished with Parmesan cheese.

**All of the pictures and recipes are credited to the website I gave you above. I did not get paid to write this blog post.






Sunday, July 14, 2013

Decorating

Guys! Finally!

You can't hear it but I am screaming "Finally" like the mad scientist creating Frankenstein who screams, "He's alive!".

FINALLY! Mwah ha ha ha

My husband and I have been looking for the perfect bench to add to my little corner. I have had this picture in my head for about two years. I wanted to get it exactly right. I'm kind of a perfectionist about making my creations come to life. And we finally found what I've been looking for! The baskets are filled with L's shoes, the cabinets are stuffed with blankets, and I think this will be a great place to slip our shoes on. (I've already caught L perched up there watching tv. :o) I think it looks pretty good! What do you think?

I would love to say that the bench was the last touch. But I can't. I just have one more thing that I want to do to it. I am planning on taking a photo that I have of one of my favorite places, in the whole world, and blowing it up to put in the window frame. I did this, one Christmas, for my father and it gives the effect that you are looking out the window at the scene.  That will be the finishing tough. I promise. And I'm not crossing my fingers behind my back. Last. Thing. Serious.





Saturday, July 13, 2013

Zuchinni

In my post the other day I mentioned that I have a zillion bags of (guestimated) one cup bags of shredded zucchini. L asked me what we were going to do with all of it, to which I replied...

"We could make zucchini fries, crispy zucchini chips, zucchini woopie pies, a mock (zucchini) apple pie, zucchini brownies, stir fry with zucchini, zucchini in lasagna..."

As I heard myself the shrimp scene from Forrest Gump started playing through my head.



I must have stopped talking at some point, engrossed in the scene in my head, because next thing I know I heard,

"Mama? Mama! You're just staring into space!"

"...Zucchini pizza,  cold zucchini salad, zucchini in alfredo pasta..."







Friday, July 12, 2013

The Great Debate

I'm in the midst of a debate. I seem to have this debate all the time. Should I wear sneakers or flip flops when I leave the house?

Sounds rather inconsequential I know. I know!


They both have their upsides and downsides for me. I long for the days when I could just run around, all day long, in my dollar flippies from Old Navy. That doesn't happen anymore. :o( So, I'll break it down for you...

Flip Flop Cons: My feet hurt and end up swollen by the end of the day.

Sneaker Cons: They make my feet really hot which causes my hot body to be hotter.

Flip Flop Pros: They keep me cooler in the summer.

Sneaker Pros: They prevent my feet from hurting and swelling.

Of course, all of this gets thrown out the window on my bad Sjogren's days because I just automatically know that I need to wear sneakers. No matter what. No matter that my flip flops are amazingly soft and cushy.

And the great debate continues....


I apologize, for some reason Blogger is not letting me add links today so I have to do it the old fashioned way....

Photo Credit or to go buy the flip flops...
http://www.zappos.com/nike-comfort-thong-black-white?gclid=CK-014iPqrgCFQqf4AodV2IAAw&zfcTest=fcl%3A1

Photo Credit or to go buy the pair of sneakers...
http://shop.reebok.com/us/product/women-zigkick-ride-shoes/NR225?cid=V46123&breadcrumb=1z13y9bZ1z13070&search=reebok+sneakers&cm_vc=STATIC_SHOP_SEARCH



Thursday, July 11, 2013

Zucchini

We had a zillion zucchini to use up from our CSA the past two weeks. So I decided to dice it up, with my trusty mandolin slicer, all at once and freeze the stuff I didn't use. We ended up with ten (guestimated) one cup bags all together. And my hand didn't even hurt when I was done!! (It did, however, hurt after I bone-headly bonked my arthritic knuckles on the corner of the cabinet five minutes later!)

We also had leftover icing from a sleepover
jamboree, for L's birthday party, that needed to be used. So I went looking for something to make with leftover icing and zucchini. What I came up with? Zucchini Whoopie Pies!

We mixed up a batch, after I sliced up the zucchini, and baked it up. I don't know why, but for some reason I expected the whoopie pies to be fairly tricky, but it was surprisingly easy to make.
Then I let L slather those things up with icing and smush them down.

We ended up with about twenty of them. I wasn't really expecting them to be great. Again, I'm not sure why as I like zucchini bread. Let me tell you people, these things are AMAAAAA-ZING!!! SO good! Ugh. I am going to hear them whispering to me, from the kitchen, until they are gone.

"Eaaaa- aaaaaa- ttttttt me. Eat Me. EAT ME!"

Yummers! Seriously!

If you want to take a stab at making your own Zucchini Woopie Pies you can find the recipe here at Bakeaholic Mama.







Wednesday, July 10, 2013

Deconstructing

 I wrote this post last summer. I have absolutely no idea why it never got posted. So I am posting it now since this still applies...

Usually, when I am looking for an activity for L to do it's something that she puts together. Something that she glues, tapes, staples, etc, to make art of some kind. This time I decided to let her deconstruct something. I gave her an old hair dryer (that was broken) to take apart.  She spent over a half hour with the "project". She unscrewed things, pried pieces apart, cut wires, and pulled off buttons. I think it delighted her to be allowed to break something for a change. Once she was done the hair dryer was a forlorn naked version of itself.

I'll have to keep an eye out for more things for L to take apart.





Tuesday, July 9, 2013

Sjogrens Baby!

You know this song. It's been everywhere for quite awhile. EVERY. WHERE. If you need a reminder feel free to watch the video. :o) Anyway, I was in a silly mood and decided to have some fun. 



My sincere apologies to, Carly Rae Jepsen, who's song I have butchered all in the name of Sjogren's Humor....


It’s Sjogren’s Baby

I don’t sing like Adele,
But I’ve got a secret to tell,
I use humor as well,
Now, I’ll get on my way

Before you lay out your dis,
Okay, my story is this,
I have moments of bliss,
But not each n’ every day.

‘Cause my joints are growin’
And my tears aren’t flowin’
Sunshine foregoin’
What-do you think this is, now, lady?

Hey, I just met you,
And this is crazy,
I’m having a flare up,
It’s Sjogren’s, baby!

It’s hard to walk up,
All my stairs,
I’m having a flare up,
It’s Sjogren’s, baby!

Hey, I just met you,
And this is crazy,
I’m having a flare up,
It’s Sjogren’s, baby!

And all the doctors,
Try to help me,
I’m having a flare up,
It’s Sjogren’s, baby!

Patches of hair falling out,
Lady parts in a drought,
You, don’t want me to spout,
About that all day long

My energy’s all gone,
Insomnia from dusk ‘til dawn,
Which causes me to yawn,
Can’t go out and play

‘Cause my joints are growin’
And my tears aren’t flowin’
Sunshine foregoin’
What-do you think this is, now, lady?

Hey, I just met you,
And this is crazy,
I’m having a flare up,
It’s Sjogren’s, baby!

It’s hard to walk up,
All my stairs,
I’m having a flare up,
It’s Sjogren’s, baby!

Hey, I just met you,
And this is crazy,
I’m having a flare up,
It’s Sjogren’s, baby!

And all the doctors,
Try to help me,
I’m having a flare up,
It’s Sjogren’s, baby!

I am happy with my life
You should know that
You should know that
You should so know that

I am happy with my life
You should know that
And you should so know that

It’s Sjogren’s baby!



Monday, July 8, 2013

Birthday

Happy Birthday to my amazing, super talented, sassy girly! Seven! Seriously, where's the time going?

I love you more than all the sand on the beach!




Saturday, July 6, 2013

Funnies

This video has had my girly and I giggling for a few days now. I just had to share it with all of you!



Wildebeest from Birdbox Studio



Friday, July 5, 2013

Rollin'

Driving down the road, the windows down and the music blasting.... to Disney movie songs. Yeah, we're rollin'.

He he he



Wednesday, July 3, 2013

Woofers

We took doggy girl #2 to get her summer hair cut. She normally looks like this. Apparently, Barre has a blast and loved up on the groomers, like only she can do.

While Barre was away doggy girl #1 decided to snuggle up close. I think there may have been a tiny part of Halle that was upset that her sister was gone. But just a tiny part, and she wouldn't admit it if you offered a whole bag of bones.


And this is Barre after her hair cut. It makes it soooo much easier for us to keep up with the vacuuming during the summer. Less allergy problems for me!