Friday, August 30, 2013

Restasis Update

After posting about the new dry eye therapy being done at Mayo Clinic Arizona, I thought I would update about my Restasis experience.

I have now been on Restasis for over six months. Last time I checked in with you all about it I wasn't completely sure it was working for me as I had only been on it for a month or two.

Now, I can completely 100% say that I love Restasis and it works so phenomenally for me!  I can tell when I have missed a dose because my eyes get scratchy and almost start begging for the drops. Ha ha

Another great side effect of the eye drops is that I have not had any Blepharitis since I started taking them twice a day. Not even one bout. Which is huge for me since I was having flares of this at least once a month before starting Restasis.

Ahhh, wonderful!!!



Wednesday, August 28, 2013

Kermit

I just had to post this today. It gave me a big smile. :o)





Tuesday, August 27, 2013

First Day of School

Our first day of school went well. I think L is well on her way to a reciprocal love affair with her teacher. Which I would like to proudly stand up and scream, "I told you so!", at my daughter. Because I knew, KNEW, she would love her! But, hmmm, that doesn't seem to be the best example for my daughter, soooo.... I'll forgo that for now.

I was pleasantly surprised with my energy levels today, though I was completely done by the time I was finished making dinner. Shew! Stick a fork in me, I was done!

I know in the future (winter time most likely) I will have to worry about energy levels more. I walk a fine line between showing my co-workers that I am hurting (and worry that I look like I am making things seems worse than they are) or not letting anyone see how badly I am hurting (and worry about people thinking that there's nothing wrong with me despite my saying there is something wrong). Fortunately, for now, I don't anticipate this problem popping up.

For now, I am just feeling blessed that I am able to work at least a little bit. And, my girly. I ALWAYS feel blessed with my girly. Especially since she's had a simply amazing first day of school, despite all her worries she had leading up to it. :o)



Monday, August 26, 2013

Love This

I absolutely LOVE this blog post written by Ashley Boynes-Shuck, entitled "What I Wish People Knew About My Chronic Illness", that was published on the Arthritis Foundation blog.

It's as if she crawled inside my head and picked out all I was feeling and verbalized it for me.

You can read it here.




Saturday, August 24, 2013

School Days

School starts on Monday for my baby girl and I. Second grade! Huh. That's crazy to me, that I have a second grader!

My girly and I were so busy having fun this summer that we completely lost track of time. I don't think either of us are ready to go back to school. In fact, I know L isn't as she was crying about it while I put her to bed tonight. :o( Broke my heart while she sobbed about not wanting to leave me behind at home.

Lucky for us, I'll be returning with the kids to do my cafeteria monitor job again this year. I'm a little worried about how my energy will hold up. It worked well last year for me so I am hoping that after a couple of weeks my body will be used to the schedule again and I will be fine. I'll keep you posted.

Til then we have a great weekend planned!!



Friday, August 23, 2013

IPL Therapy Being Used at The Mayo Clinic

The Mayo Clinic Blog put up a post about a new treatment for dry eye. Intense Pulsed Light Therapy is being used, at the Mayo Clinic in Arizona, for patients who have tried other various therapies to relieve their dry eye.

The blog post describes the therapy in this way...

"IPL uses bursts of light directed at the lower eyelids and upper cheek areas that heat the eyelid glands that are blocked with stagnant secretions. The physician is then able to manually express the stagnant material from the eyelids."

An interesting new therapy. There was also a video, which I've added to the bottom of this, which explains the therapy in more detail, if you are interested in viewing it.





Thursday, August 22, 2013

Camping, Again

 We spent the weekend camping at our favorite campsite. Our "last hurrah" before school starts next Monday!





Wednesday, August 21, 2013

Watermelon.... Mmmmm....

Found here
I had some watermelon that was just on the verge of being too ripe. And there was zero chance of us eating it before it went bad. I decided to use this recipe to make this yummy healthy treat! Can't wait to gobble it up tonight!



Monday, August 19, 2013

Yummers!



Mmm... wait! Okay, sorry, I needed to wipe the drool of my chin.

This cookie appeals to my stomach and my artistic side! My inner artist is dying to try to make one of these iced perfections! There's no way my arthritis would allow it though! For now, I will have to be happy with watching some of the other fabulous cookie tutorials that SweetAmbs Cookies has posted on Youtube!!




Sunday, August 18, 2013

Medical ID Bracelet?

Do Sjogren's patients need medical id bracelets?  This was a question posted on one of my Sjogren's Syndrome support groups.

I had not previously put much thought into this. I really only ever linked the thought of id bracelets to diseases like asthma, diabetes, allergies, or for geriatric needs. The more I thought about this, though, the more relevant I think this subject might be for me. Especially now that I am on an extra two medicines. That brings my medicine total to ten medicines. Ten! That's a lot of possibility for drug interactions in, and of, themselves. Throw in some emergency care at a hospital that doesn't have my information and that just spells complications! Yikes!

There always seems to be a stigma out there that medical id bracelets are clunky or plain. And I have found that not to be the case as I casually checked out websites who specialize in them.

I may have to put more thought into this issue and let you know what I decide. In the meantime here are some really cute medical id bracelets and links to where I found them...

Like this one from Sticky Jewelry. Cute!

Or this one from Lauren's Hope.

Here's another from Lauren's Hope. I am in love with it!

I also think this one is cute. ID For a Cure also donates a part of their proceeds to chairities and research facilities who support people with various medical conditions.



**Disclaimer** I was not paid to promote any of these websites. I honestly, am just blogging about them because they make some great options for people who don't want to be stuck with a plain id bracelet. All the pictures belong to the websites.




Saturday, August 17, 2013

Mayo

An interesting article was posted over on the Mayo Clinics blog entitled "Mayo Clinic in Arizona Part of Study to Help Regulate Immune System".

And that pretty much sums it up. Ha ha But, if you are like me, and want to read more go check it out here!



Thursday, August 15, 2013

Hershey Park Happy Part a Million and Two

As I mentioned in a blog post recently, we spent the day at Hershey Park this past week. I had forgotten that I gave my phone to L during a long-ish wait to get on the antique cars. When I went to check out a photo I had taken, yesterday, I found these...

I call it... The View; A Seven Year Old's Perspective












Wednesday, August 14, 2013

Problem Solved


Photo Credit
I've had a particular problem, all summer, and had no idea how to solve it. Suntan lotion. Ugh! The bane of my existence in the summer! My girly and I can't use spray lotion because it sets off our asthma. And I have had an extremely hard time using tradition suntan lotion cream. I cannot squeeze the cream out of the tube because of my lovely new arthritis in my pointer finger knuckles.

That is a pretty complex problem when you throw a squirmy, overly-helpful-and-gets-suntan-lotion-everywhere, seven year old!

As you've probably guessed my problem has finally been solved!

We went to Hershey Park yesterday and my friend K pulled out some lotion that I hadn't seen before. I just about swooned I was so happy!

Ladies and gentleman, Coppertone brand now has a foam lotion! Foam! What a perfect solution for us!!! All I have to do is press the button and out comes the foam lotion!

It's fairly easy to use as well. I found that it goes farther than you think it will when you squirt it on your hand. The only draw back is that it feels a little bit more oily than normal once you are lathered up with the lotion. Like an oiled watermelon contest. But that is definitely not enough of a drawback to prevent me from using it, for sure.

I was so excited about this new lotion that I ran out and bought two bottles the next day! True story.

And, no, I was not paid for this blog post in any way. I am just one arthritically challenged mom wanting to pass this info along to others. Here is a link to the lotion in case you would want more info.



Tuesday, August 13, 2013

Busy Baby Resting Mommy; Corn Cob Painting



It has been forever since I posted a craft for the kiddos! I did a fun craft with L today and thought I would share. We had extra corn on the cobb left over from our CSA that I decided to put to use this afternoon.

What you need...
Some type of paint (whatever you have on hand)
Corn on the cobb
Paint brush
Paper (again, whatever you have on hand)

Directions...
1. Peel the corn
2. Let your kiddo paint the raw corn with a paint brush
3. Roll the corn (covered in paint) across your paper




Sunday, August 11, 2013

Nice!

Taking advantage of the fantabulous weather we're having on the East Coast!



Friday, August 9, 2013

The White Tee Evolution

I was in this white t-shirt the other day. While I was in front of the mirror I actually took a second to look, and then started talking to myself.

"Hey! That looks pretty good on you. You should wear white t-shirts more often. Why don't you wear white t-shirts more often? What's going on there?"

Somewhere toward the end of my rambling my husband went by, looked in to see who I was talking to, semi shook his head in a bewildered way, and kept moving on. He's not stupid. I don't think he wanted to get sucked into whatever crazy was happening in front of the bathroom mirror. Momentarily distracted by him I yelled to my hubbster, "Hey! This white t-shirt looks good on me!". While I was listening to his half hearted non committal answer (because, let's be honest, he didn't want to get involved let alone interact with the crazy looking at herself in the mirror) I realized what was going on.

I pictured the line-up of t-shirts I have in my closet. I must to admit to having a whole lot of them because I am usually a t-shirt and jeans kind of girl. They mostly range in the blues and greys. What I don't have a lot of is, you guessed it, white t-shirts. I started thinking about the last time I wore a white t-shirt and the time before that, and the time before that. And then I had my answer.

There's been an evolution of t-shirts in my house. The dwindling of the white tee started when I became a Mom.

Back when L was a baby she spit up her formula constantly. And she had the talent for always having it land on me. My husband could have been feeding her beside me and she would still find some way to get the spit up on me. And, folks let me tell you, it was next to impossible to get this brand of formula spit up out of clothes. I think the formula spit up took out at least three white tees during the baby years.

Next came the toddler and preschool years. At this point my child had no concept of how to use a napkin or tissue to save her life. Which meant that every shirt I threw in the wash was smeared with lines of food goo, snot, or some combination of the two.

Now, I'm more likely to end up with residue for various crafts and science experiments we've completed.

While I am a little sad that white won't be in my wardrobe, full time again, for quite awhile, I wouldn't trade all those messy mommy moments for the world!!







Thursday, August 8, 2013

Pesto


I received a huge amount of basil in my CSA this week. Last year I did as well and froze most of it thinking I would add it to soups during the winter. Well I didn't. I pulled it out of the freezer in the spring, mostly forgotten about, and fully covered in freezer burn. Basil, meet my trash can.

This year I was determined to put it all to use. So, I decided to make pesto out of it. Have I made pesto before? Nope. But I thought it would be yummy on some paninis that I've had planned to make for dinner.

I looked up a recipe, to get an idea of the measurements used, and then winged it. It turned out super yummy and I can't wait to have it with dinner tonight!




Wednesday, August 7, 2013

What To Do On Migraine Day

I woke up with a migraine the other day. Not. Fun. Ugh. And the worst part was that the weather was AMAZ-ING! But I got over my "spilt milk" and moved on to other things. After realizing I was going to be "Spectacular Couch Mama"  until I got enough caffeine in me to hopefully win against Evil Migraine Guy (or so I thought of it in my head), ahem, until I got rid of the migraine I decided I needed a game plan.

L has been nicely asking me (Okay she has, point-blank, been bugging the bejezuz out of me!) to do some cross stitching. If I was going to be stuck on the couch with a migraine, while simultaneously having a good arthritis day, you better believe I would use it to my advantage. (Or, I figured that out after longingly squinting out the window at the lovely day God had blessed us with.) And so I went with it!

We both got comfy on the couch, got down with our bad selves to some country music, while we stitched away. It was a pretty peaceful morning.

Now, the afternoon, that was a whole different story, because L decided to be her own little version of Dr. Jekyl and Mr. Hyde. Good thing Evil Migraine Guy was gone by then!

I'm still considering that day a Sjoggie parenting win!! Lemons and lemonade. All I'm saying.



Sunday, August 4, 2013

Beach

The fam and I spent the week at the beach. I'll be taking a few days to get back into the swing of things. In the mean time enjoy some of the pics from our vacay....


 Potty stop turned into a camera shot.
 The hubbster and I.
 Crabby glasses. L fell in love with them, especially when she realized the claws flip up.
 Straw hats that L insisted we wear when we played mini golf.
 We had amazing weather, like this, all week with the exception of the last day.
 Love this reflection in the water. L was thrilled that she took it.
 Sand dunes at Rehobeth Beach.
 Wave jumping.
 My little froggy.


 Crab fishing was a LOT of fun.