Monday, March 30, 2015


I was looking back through pictures of my husband and I and suddenly realized how far we've come in our journey to be healthier. We're at 70 pounds lost together and counting!!

Monday, March 23, 2015

See a Need Fill a Need

A friend of mine took up knitting. She showed off a cute pair of fingerless gloves on Facebook. It got me thinking, I could really use a pair of those!  Oooh with a pocket to slip my Hot hands packs into. Only it needed to be a pocket in the palm of my hand instead of on the top of my hand so I could warm my fingers up too, if I needed it. Now that would be amazing for my Reynauds!! (Which you can read more about here.)

So I did an internet search and couldn't really find anything that fit what I wanted. Okay, yeah I was being picky, I'll admit. I had a certain thought in mind and just couldn't find anything to match it. So, I decided to get crafty and see what I could come up with.
I started with a scrap of leftover fleece that I had laying around the house. I measured my hand and arm and cut two strips.
Next I simply sewed the two longer sides together.

And there are my fingerless "gloves"! They reach down my forearm and can slide up to cover my hands if I need them to.

I can even fold them over to slip one of my Hot hands in to sit over the palm of my hand. Perfect!!!

Monday, March 16, 2015

Monday Smile

Fur-baby #1 had an E.T. moment the other day. (Ie; paralyzed by fear because of the vacuum, she momentarily let L take advantage of the situation and wrap her in blankets.)

Monday, March 9, 2015

I Am Enough

In the past few days I have been struggling with something very common to chronic illness patients. I face this feeling every year around this time...The thought of, "What makes me worth it?".

With all the Sjogren's issues that I write about in my blog, I rarely go into how much my husband and daughter are affected by my illness. It's usually about what a Sjogren's patient has to go through. For every allowance I have to make to live, survive, and overcome Sjogren's. Every. Single. Day. My family deals with every bit as much, if not more than I do. There's missed trips to the park on low-energy days. My husband has taken over the bulk of the laundry duties so I don't have to carry baskets full of clothes up and down the stairs. And he let's me put my, ice cold, Reynaud's hands on his back to warm them up. That's just the tip of the ice burg and doesn't even begin to go into the tiny little things that my husband thoughtfully does for me every day, in order to make things easier for me, that I don't even realize that he's doing.

It hurts. I have guilt so deep, for what my husband and daughter have to endure because of me, that it hurts. It digs into my heart and just sits there in a heavy lump that makes my eyes burn with tears and my throat close up with remorse. And it leaves me wondering what makes me worth it. What do I give to them to make up for the fact that they deal with these hardships because of me. I don't mean monetarily, or anything so superficial. Buying my daughter an extra DS game isn't going to solve the issue clearly. It's about what I give to the relationship that makes my husband want to stick around and makes my daughter continue to love me unconditionally without getting tired of the ridiculousness of this disease we deal with. Because it IS a "we" that happens when a person in a family has a chronic illness.

My mind seems to wonder and wander over and around these thoughts and feelings about this issue. And I hope that I may have conveyed just a small portion of what I am thinking and feeling well enough. Though, I do feel as if this post is a little "all over the place" as I wrote things as they came to the forefront of my mind. Or perhaps it is merely a good example of the complexity of emotions and thoughts that revolve around dealing with a chronic illness on a daily basis. Sjogren's isn't just about how it affects a person physically. There is a very real emotional side that comes into play as well ( as is the case with a lot of chronic illnesses).

For now, I am trying to block out these thoughts and feelings of, "What makes me worth it" and focus on "I am enough".

I. Am. Enough.

Monday, March 2, 2015


I had two pretty important appointments in the last two weeks. The first one was my follow up doctors appointment. I had previously written about it here. I had my three month follow up to have another eye scan done to check to see if anything had changed, in regards to my Plaquenil I take daily. Fortunately, nothing has changed and my eye doctor has cleared me to take the medicine for another six months. At which point I'll have another eye scan done to look for changes. Win!

The second appointment was my six month check up with my rheumatologist, Dr. A. I declared that I was boring, at the moment, when it came to my Sjogren's. And she agreed. Normally I would be slightly offended to  be considered boring in any way. Except when it means no new rheumatology symptoms for the last five months. Just the same ol' same ongoing ones here, baby!!